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Caregiving

Mid Stage Dementia

Symptoms:

  • Forgetting events or personal history
  • Experiencing confusion regarding where they are and what time it is
  • Increased tendency to wander or become lost
  • Demonstrating personality and behavioral changes, including suspiciousness and delusions or compulsive, repetitive behavior.

*note that there may be overlap with other stages

Resources & Recommendations:

  • Talk to healthcare provider at least annually

    Include Phone numbers and links to healthcare systems and health plans to find a physician.

  • Advance Care Planning
    • Start the Conversation
    • Advance Healthcare Directive
    • Power of Attorney

  • I can’t pay for the services we need. What do I do?
    • Med-QUEST application
    • Medicare spend down program
    • SNAP
    • Volunteer programs
    • Kūpuna Care Program – link to aging and disability resource centers
    • Add other grants as available (Home Instead, national)

  • I’m noticing changes in their behavior. What do I do?
    • Dementia Education Hub
    • Alzheimerʻs Caregiving and The Caregivers Website & Videos
    • Hawaii Circle of Care for Dementia – Catholic Charities Videos

  • Financial Guidance

    Place safeguards on finances and ask trusted people for support.

  • Home safety tips
    • Accessibility for bathrooms, entrances, etc.
    • Color contrasting
    • Removing clutter
    • Disguising exit doors

  • Support groups for person living with dementia and caregivers

    Visit our Events page to learn more!

  • Wandering

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  • Transportation
    • Apply for parking permit for person with a disability
    • Non-emergency Medical Transportation info
    • Car adaptations
    • TSA Cares Notification Card for disability

  • I need help taking care of my person living with dementia. Who can help?

    Private Home care

    Home care offers non-medical services such as cooking, cleaning, personal grooming, transportation, and companionship. It is usually paid for privately by the patient or covered through long-term care insurance.

    Home health care

    Home health care offers both home care and medical services to patients. These services include medication management, wound care, pain management, and more. To qualify for home health care, patients must meet specific eligibility criteria, and the services are typically covered by Medicaid, Medicare, and most private insurance plans.

    Adult day care

    Adult day care offers support and companionship to older adults who need supervision during the day. These programs give family members and caregivers respite, giving them the chance to work, take care of errands, or rest. Adult day care services may be partially covered by Medicaid and some Medicare Advantage plans, depending on eligibility and plan details. These services can also be paid for privately.

Late Mid Stage Dementia

Symptoms:

  • Changes in mood. Depression and apathy are particularly common
  • Changes in behavior including aggression, heightened irritability, and restlessness.
  • Physical limitations such as increased risk of falls, incontinence, and walking more slowly
  • Increased memory issues. The person may revert to an earlier time in their life or stop recognizing loved ones

*note that there may be overlap with other stages

Resources & Recommendations:

Resource Library

Other Resources

ALS Network

Care management, support groups, online info, advocacy, education/webinars

  • Types: Education & Training, Guidance & Counseling, Info & Resources, Support Groups & Community
  • Stages: Early, Middle, Late
  • Areas: National, Statewide, Hawaii, Kauai, Maui, Oahu
  • Contact:

    Cherryl Fluke, Rex Like

View Resource

Alu Like, Native Hawaiian Caregiver Support

Info & assistance accessing services, Counseling, Support Groups, respite services

  • Types: Guidance & Counseling, Support Groups & Community
  • Stages: Early, Middle
  • Areas: Oahu, Hawaii, Maui, Kauai, Statewide
  • Contact:

    ph: (808) 535-6700

View Resource

Alzheimer’s Association Hawaiʻi Chapter

support groups, counseling, educational presentations, resources and info on website

  • Types: Education & Training, Guidance & Counseling, Info & Resources, Support Groups & Community, Specializing in Advocacy
  • Stages: Before, Early, Middle, Late
  • Areas: Oahu, Hawaii, Maui, Kauai, Statewide, National, Online
  • Contact:

    LJ Duenas, Ivy Castellano, Coby Chock. To register for support group, please call 808.518.6651.

View Resource

Alzheimer’s Caregiving & The Caregivers

prepare, equip, and provide evolving support to “families” caregiving; Information, caregiving tips, online video series on HI Now

  • Types: Education & Training, Info & Resources
  • Stages: Middle, Late
  • Areas: Hawaii, Online
  • Contact:

    Tony Vericella

View Resource

Caregiver Connection of Hawaiʻi

Support groups, online resource library

  • Types: Info & Resources, Support Groups & Community
  • Stages: Early, Middle, Late
  • Areas: Online
View Resource
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Select the stage of dementia your person is in. This will take you to resources curated for caregiving in that stage.

Mild Cognitive Impairment (Before)

Experiencing difficulty with word recall and comprehension, memory for appointments and familiar locations, and challenges with decision-making, task completion, and following instructions may indicate cognitive impairment.

View Resources

Early Stage Dementia

Early stage dementia is characterized by difficulties with executive cognitive functions like planning and judgment, problem-solving, abstract thought, grasping the “big picture,” and performing complex tasks that were previously manageable.

View Resources

Late Stage Dementia

In late-stage dementia, individuals require constant care for daily activities, lose awareness of their surroundings and recent events, experience physical decline affecting mobility and swallowing, and become more susceptible to infections like pneumonia.

View Resources
View All Resources

Support Groups & Upcoming Events

Support Group

May 19th from 6:30 pm - 8:00 pm

Alzheimer's Association Hawaiʻi Chapter (Oʻahu) Caregiver Support Group

We offer support groups for caregivers and individuals living with Alzheimer’s or other dementia. All support groups are facilitated by trained individuals. Support groups create a safe, confidential, supportive environment […]

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Support Group

May 20th from 4:00 pm - 5:00 pm

Caregiver Foundation Caregiver Support Group

The Caregiver Foundation hosts a monthly virtual support group for Caregivers. These groups provide a space for Caregivers to come together, share experiences, and build community. We also feature guest […]

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Support Group

May 20th from 8:00 pm - 9:00 pm

Gimme-A-Break Caregiver Support Group

Gimme A Break offers free support, resources and more through our Weekly Support Sessions, online and in-person every Tuesday evening Join our Community! Do it for you! You are never […]

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