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Caregiving

Mid Stage Dementia

Symptoms:

  • Forgetting events or personal history
  • Experiencing confusion regarding where they are and what time it is
  • Increased tendency to wander or become lost
  • Demonstrating personality and behavioral changes, including suspiciousness and delusions or compulsive, repetitive behavior.

*note that there may be overlap with other stages

Resources & Recommendations:

  • Talk to healthcare provider at least annually

    Include Phone numbers and links to healthcare systems and health plans to find a physician.

  • Advance Care Planning
    • Start the Conversation
    • Advance Healthcare Directive
    • Power of Attorney

  • I can’t pay for the services we need. What do I do?
    • Med-QUEST application
    • Medicare spend down program
    • SNAP
    • Volunteer programs
    • Kūpuna Care Program – link to aging and disability resource centers
    • Add other grants as available (Home Instead, national)

  • I’m noticing changes in their behavior. What do I do?
    • Dementia Education Hub
    • Alzheimerʻs Caregiving and The Caregivers Website & Videos
    • Hawaii Circle of Care for Dementia – Catholic Charities Videos

  • Financial Guidance

    Place safeguards on finances and ask trusted people for support.

  • Home safety tips
    • Accessibility for bathrooms, entrances, etc.
    • Color contrasting
    • Removing clutter
    • Disguising exit doors

  • Support groups for person living with dementia and caregivers

    Visit our Events page to learn more!

  • Wandering

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  • Transportation
    • Apply for parking permit for person with a disability
    • Non-emergency Medical Transportation info
    • Car adaptations
    • TSA Cares Notification Card for disability

  • I need help taking care of my person living with dementia. Who can help?

    Private Home care

    Home care offers non-medical services such as cooking, cleaning, personal grooming, transportation, and companionship. It is usually paid for privately by the patient or covered through long-term care insurance.

    Home health care

    Home health care offers both home care and medical services to patients. These services include medication management, wound care, pain management, and more. To qualify for home health care, patients must meet specific eligibility criteria, and the services are typically covered by Medicaid, Medicare, and most private insurance plans.

    Adult day care

    Adult day care offers support and companionship to older adults who need supervision during the day. These programs give family members and caregivers respite, giving them the chance to work, take care of errands, or rest. Adult day care services may be partially covered by Medicaid and some Medicare Advantage plans, depending on eligibility and plan details. These services can also be paid for privately.

Late Mid Stage Dementia

Symptoms:

  • Changes in mood. Depression and apathy are particularly common
  • Changes in behavior including aggression, heightened irritability, and restlessness.
  • Physical limitations such as increased risk of falls, incontinence, and walking more slowly
  • Increased memory issues. The person may revert to an earlier time in their life or stop recognizing loved ones

*note that there may be overlap with other stages

Resources & Recommendations:

Resource Library

Other Resources

Senior Companion Program

part-time volunteer program that enrolls eligible low-income seniors statewide to provide in-home companionship and limited personal care to frail elders and respite to caregivers

  • Types: Respite
  • Stages: Early, Middle
  • Areas: Oahu
  • Contact:

    (808) 832-0340

View Resource

State Kupuna Care Program

support, counseling, education, training, respite care

  • Types: Education & Training, Guidance & Counseling, Info & Resources, Respite
  • Stages: Middle, Late
  • Areas: Oahu, Hawaii, Maui, Kauai, Statewide
  • Contact:

    Aging & Disability Resource Center
    ph: (808) 643-ADRC

View Resource

The Caregiver Foundation

Workshops, Coordination Services, Daily Money Management, Family Caregiving Planning, Guardianship, Home Organizing Services, Professional Services Support, Senior Home Cleaning Services

  • Types: Education & Training, Guidance & Counseling
  • Stages: Early, Middle, Late
  • Areas: Oahu
  • Contact:

    Gary Powell
    Phone: (808) 625-3782

View Resource
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Select the stage of dementia your person is in. This will take you to resources curated for caregiving in that stage.

Mild Cognitive Impairment (Before)

Experiencing difficulty with word recall and comprehension, memory for appointments and familiar locations, and challenges with decision-making, task completion, and following instructions may indicate cognitive impairment.

View Resources

Early Stage Dementia

Early stage dementia is characterized by difficulties with executive cognitive functions like planning and judgment, problem-solving, abstract thought, grasping the “big picture,” and performing complex tasks that were previously manageable.

View Resources

Late Stage Dementia

In late-stage dementia, individuals require constant care for daily activities, lose awareness of their surroundings and recent events, experience physical decline affecting mobility and swallowing, and become more susceptible to infections like pneumonia.

View Resources
View All Resources

Support Groups & Upcoming Events

Support Group

June 2nd from 4:00 pm - 5:00 pm

Caregiver Foundation Youth Caregiver Support Group

Our Youth Caregiver Support Group is a virtual meet-up hosted monthly for young caregivers. If you are 20 years old or younger and identify as a caregiver, please join us! […]

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Support Group

June 2nd from 6:30 pm - 8:00 pm

Hale Hauʻoli Caregiver Support Group

Caregiving can be a difficult and isolating experience, but interacting with people in similar situations can help make the task more manageable. Support groups provide a space where caregivers can […]

Learn More
Support Group

June 3rd from 8:00 pm - 9:00 pm

Gimme-A-Break Caregiver Support Group

Gimme A Break offers free support, resources and more through our Weekly Support Sessions, online and in-person every Tuesday evening Join our Community! Do it for you! You are never […]

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