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Caregiving

Late Stage Dementia

Symptoms:

  • Require around-the-clock assistance with daily personal care.
  • Lose awareness of recent experiences as well as of their surroundings.
  • Experience changes in physical abilities, including walking, sitting and, eventually, swallowing.
  • Become vulnerable to infections, especially pneumonia.

*note that there may be overlap with other stages

Resources & Recommendations:

Resource Library

Other Resources

Hawaiʻi Family Caregiver Coalition

Advocacy for caregivers; caregiver advocacy training; annual conference

  • Types: Specializing in Advocacy
  • Stages: Early, Middle, Late
  • Areas: Oahu, Hawaii, Maui, Kauai, Statewide
  • Contact:

    Kathy Wyatt, Gary Simon

View Resource

Ko‘olau Caregivers’ Support Group – Koolau Golf Course club house

Support Group

  • Types: Support Groups & Community
  • Stages: Early, Middle, Late
  • Areas: Oahu
  • Contact:

    Phone: (808) 233-3789

View Resource

Kula No Na Poʻe Hawaiʻi

several community based research projects; ʻAuamo Ke Kuleana O Nā Maʻi Poina = Carrying responsibilities associated with Dementia; I Kua Na’u (Advance Care Planning)

  • Types: Education & Training
  • Stages: Before, Early, Middle, Late
  • Areas: Oahu
  • Contact:

    Adrienne Dillard PhD, Puni Kekauoha, Mahealani

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Kupuna Pono, The Mediation Center of the Pacific

Family conferencing and mediation for elder care issues

  • Types: Guidance & Counseling
  • Stages: Early, Middle, Late
  • Areas: Oahu
  • Contact:

    Phone: (808) 521-6767

View Resource

Pohai Nani

monthly support group in addition to their ALF, ILF, ICF

  • Types: Support Groups & Community
  • Stages: Middle, Late
  • Areas: Oahu
  • Contact:

    To register contact Joanne Cinter (808) 236-7832 or jcinter@good-sam.com

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Select the stage of dementia your person is in. This will take you to resources curated for caregiving in that stage.

Mild Cognitive Impairment (Before)

Experiencing difficulty with word recall and comprehension, memory for appointments and familiar locations, and challenges with decision-making, task completion, and following instructions may indicate cognitive impairment.

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Early Stage Dementia

Early stage dementia is characterized by difficulties with executive cognitive functions like planning and judgment, problem-solving, abstract thought, grasping the “big picture,” and performing complex tasks that were previously manageable.

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Mid Stage Dementia

Mid-stage dementia involves increased memory loss for personal history and recent events, confusion about time and location, a tendency to wander, and the emergence of personality and behavioral changes such as suspiciousness, delusions, or repetitive behaviors.

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Support Groups & Upcoming Events

Support Group

June 2nd from 4:00 pm - 5:00 pm

Caregiver Foundation Youth Caregiver Support Group

Our Youth Caregiver Support Group is a virtual meet-up hosted monthly for young caregivers. If you are 20 years old or younger and identify as a caregiver, please join us! […]

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Support Group

June 2nd from 6:30 pm - 8:00 pm

Hale Hauʻoli Caregiver Support Group

Caregiving can be a difficult and isolating experience, but interacting with people in similar situations can help make the task more manageable. Support groups provide a space where caregivers can […]

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Support Group

June 3rd from 8:00 pm - 9:00 pm

Gimme-A-Break Caregiver Support Group

Gimme A Break offers free support, resources and more through our Weekly Support Sessions, online and in-person every Tuesday evening Join our Community! Do it for you! You are never […]

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