Late Stage Dementia
Symptoms:
- Require around-the-clock assistance with daily personal care.
- Lose awareness of recent experiences as well as of their surroundings.
- Experience changes in physical abilities, including walking, sitting and, eventually, swallowing.
- Become vulnerable to infections, especially pneumonia.
*note that there may be overlap with other stages
Resources & Recommendations:
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Talk to healthcare provider at least annually
Include Phone numbers and links to healthcare systems and health plans to find a physician.
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Ensure the Advance Care Planning documents are up to date
- Effective now? Advance Healthcare Directive, Power of Attorney
- Surrogate
- Guardianship
- POLST form
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I need help taking care of my person living with dementia. Who can help?
- Private Home care
- Home health care
- Adult day care
- Placement options: CCFFH, ARCH/EARCH, ALF, ILF, ICF, SNF
- This is too much. Can someone help me navigate this?
- Kupuna Care Pair
- CareSift
- Etc.
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I can’t pay for the services we need. What do I do?
- Med-QUEST application
- Medicare spend down program
- SNAP
- Volunteer programs
- Kūpuna Care
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Consider palliative care, hospice care
- Hui Pohala
- Kokua Mau
-
Home safety tips
- Accessibility for bathrooms, entrances, etc.
- Color contrasting
- Removing clutter
- Disguising exit doors
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Personal care info - how to help with bathing, dressing, etc.
- Dementia Education Hub
- Alzheimerʻs Caregiving and The Caregivers Website & Videos
- Hawaii Circle of Care for Dementia – Catholic Charities Videos
- GWEP Youtube Channel for care home operators
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Support groups for person living with dementia and caregivers
Visit our Events page to learn more!
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Transportation
- Apply for parking permit for person with a disability
- Non-emergency Medical Transportation info
- Car adaptations
- TSA Cares Notification Card for disability
Resource Library
ALS Network
Care management, support groups, online info, advocacy, education/webinars
- Types: Education & Training, Guidance & Counseling, Info & Resources, Support Groups & Community
- Stages: Early, Middle, Late
- Areas: National, Statewide, Hawaii, Kauai, Maui, Oahu
-
Contact:
Cherryl Fluke, Rex Like
Alzheimer’s Association Hawaiʻi Chapter
support groups, counseling, educational presentations, resources and info on website
- Types: Education & Training, Guidance & Counseling, Info & Resources, Support Groups & Community, Specializing in Advocacy
- Stages: Before, Early, Middle, Late
- Areas: Oahu, Hawaii, Maui, Kauai, Statewide, National, Online
-
Contact:
LJ Duenas, Ivy Castellano, Coby Chock. To register for support group, please call 808.518.6651.
Alzheimer’s Caregiving & The Caregivers
prepare, equip, and provide evolving support to “families” caregiving; Information, caregiving tips, online video series on HI Now
- Types: Education & Training, Info & Resources
- Stages: Middle, Late
- Areas: Hawaii, Online
-
Contact:
Tony Vericella
Caregiver Connection of Hawaiʻi
Support groups, online resource library
- Types: Info & Resources, Support Groups & Community
- Stages: Early, Middle, Late
- Areas: Online
CareSift
provides a uniquely personalized approach to matching seniors with care providers at no cost to families.
- Stages: Middle, Late
- Areas: Oahu, Hawaii, Maui, Kauai, Statewide
-
Contact:
Candace Slater
View More Resources
Select the stage of dementia your person is in. This will take you to resources curated for caregiving in that stage.
Mild Cognitive Impairment (Before)
Experiencing difficulty with word recall and comprehension, memory for appointments and familiar locations, and challenges with decision-making, task completion, and following instructions may indicate cognitive impairment.
Early Stage Dementia
Early stage dementia is characterized by difficulties with executive cognitive functions like planning and judgment, problem-solving, abstract thought, grasping the “big picture,” and performing complex tasks that were previously manageable.
Mid Stage Dementia
Mid-stage dementia involves increased memory loss for personal history and recent events, confusion about time and location, a tendency to wander, and the emergence of personality and behavioral changes such as suspiciousness, delusions, or repetitive behaviors.
Support Groups & Upcoming Events
June 2nd from 4:00 pm - 5:00 pm
Caregiver Foundation Youth Caregiver Support Group
Our Youth Caregiver Support Group is a virtual meet-up hosted monthly for young caregivers. If you are 20 years old or younger and identify as a caregiver, please join us! […]
June 2nd from 6:30 pm - 8:00 pm
Hale Hauʻoli Caregiver Support Group
Caregiving can be a difficult and isolating experience, but interacting with people in similar situations can help make the task more manageable. Support groups provide a space where caregivers can […]
June 3rd from 8:00 pm - 9:00 pm
Gimme-A-Break Caregiver Support Group
Gimme A Break offers free support, resources and more through our Weekly Support Sessions, online and in-person every Tuesday evening Join our Community! Do it for you! You are never […]
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